Who We Are
About Us — SCAN National Advisory Board
Greetings! My name is Idelle Datlof, I live in Cincinnati, Ohio and I was first diagnosed with M.S. (multiple sclerosis) in 1978. I am trained as a clinical social worker, received my M.S.W. from the University of Michigan in 1971, and for most of my professional career worked in the field of mental health. I have paid close attention to research and "breakthroughs" for more than twenty years as my symptoms have worsened and my life has been constricted by the disease. I understand that the advancement of this research raises some difficult issues; that is neither new nor unique to modern medicine. The fates of those of us who can benefit need to be added to the equation; our human faces made familiar to the persons weighing the decisions. I have planned and designed this web site, and am committed to the idea that energetic support of this promising research by the federal government is essential to restore to health the lives of so many Americans stricken by devastating diseases. To achieve results for the future, we must act now.
with grandson Laurens
Raymond Barglow: My name is Raymond Barglow and I am happy to be working with Idelle Datlof and others to advocate stem cell research. We recognize that there are many millions of people who stand to benefit from the therapies that this research can lead us to.
Here’s a bit of background. I am a bio-ethicist, psychologist, and writer. In fact, recently I’ve been writing about the stem cell research controversy. One of the reasons why I am interested in this issue is that my mother Hilda died of Alzheimer’s. I would have given anything to help her reverse this disease. I would like others not to have to go through the suffering that Alzheimer’s entailed for our family and friends, as well as for Hilda herself.
I have a personal request: please consider joining us. Together we can help one another to help our nation get behind this humane effort.
Dan Kiefer is an attorney, freelance writer and activist. He was diagnosed with Parkinson’s Disease in 1998, at age 35. He has been actively involved in the fight against Parkinson’s and the fight for funding for stem cell research. In addition to his work with the Stem Cell Action Network (SCAN), he founded and led a young-onset PD support group at
Steve Meyer: My name is Steve Meyer, and I have been a diabetic for over 50 years. I am a civil engineer located in Chattanooga Tennessee, and have a great interest in science and diabetes research. I was blessed to have survived a three day coma when I was 13 months old in 1953 before I was diagnosed with diabetes. I took as many as six injections a day for 49 years until I got an insulin pump last year. I have outlived virtually all the charts projecting what my life expectancy should be. But I know the odds are against me for keeping good health and having a decent quality of life. Many diabetics do not. The thought of blindness and kidney disease and other complications have driven me to do what the doctors instructed.
I now look forward to the time when researchers find a cure for diabetes and I am very pleased and excited that I can work with the dedicated individuals of SCAN like Idelle, Raymond, Peter, Richard and Eric.
Those of us working with SCAN and YOU have an opportunity to make a difference for not thousands, but MILLIONS of people with autoimmune diseases and spinal cord injuries. This is a case where each individual is important to further the research necessary to find a cure.
Richard Arvedon: (in the background of the photo on the left, with his daughter Emma) I grew up in a family where social activism was not an option. If you did not make the world a better place then your life was not justified. My mother was a union activist who helped lead the effort to unionize Bloomingdales in the 1930’s. When my father died Congressman Barney Frank eulogized him for having demonstrated to the Congressman in the late 1960’s that both “tough minded pragmatism and determined idealism….were the two essential halves of anyone who would be a whoe, integrated advocate for effective social change.”
My own activism included in time and place: Marks Mississippi, the town Dr. King declared to be, “the symbolic center of poverty in America”, in the 1960’s; directing legal aid for the Navajo Nation in the 1980’s; and the Alabama Juvenile Gun Buy Back in 1996.
Since Emma’s illness my focus as been to unshackle the political restraints that hobble the research which I believe has the best hope of saving my little girl. I consider it one of the true privileges of my life to be able to participate with these extraordinary people in the emergence of a true grass roots movement on behalf of life and health. I trust my parents would be proud.
Marion J. Riggs: (holding the tablet in the photo on the left) Hello, I am Marion J. Riggs. I am a graduate student pursuing a degree in Bioinformatics, and I work in the Center for Aging and Brain Repair at the University of South Florida in the College of Medicine. My belief in the benefits that stem cell research holds for posterity has led me to join forces with SCAN, and to start the Society for Stem Cell Research along with the Student Society for Stem Cell Research. This is a very exciting time in medicine and stem cell research holds vast potential to treat many currently intractable conditions. However, many efforts are inhibiting the progress of this promising field of medicine.
Meanwhile, millions of Americans are caught hanging in the balance as a pall is cast upon the field of stem cell research. Federal funding is needed for basic research to be developed into clinical applications, and SCNT is needed to derive transplantable stem cells that the host’s immune system will not reject. This is why we need you. We need to communicate effectively to our elected officials that we support federal funding of new pluripotent stem cell lines and SCNT for therapeutic purposes. You can help by contributing to the “Portraits of Hope” and by signing the Stem Cell Action Pledge.
The First International Stem Cell Action Conference, sponsored by SCAN, was held 2004. We each have a voice. We each can make a difference. It is urgent that we act now and voice our support of stem cell research, so that our loved ones and society can reap the rewards of novel therapies from this research as soon as possible. We all want and envision a healthier tomorrow. Let’s help make this happen.